Some of you may have caught the news report on Avastin. If you were like me (two months ago) that news report wouldn’t have meant much. Today that news report has made me very nervous. The FDA is removing its approval of Avastin for use in breast cancer treatment. The claim that Avastin will keep the cancer away for a longer period of time is now proving to be false. Avastin has also been found to cause kidney damage. This is part of my chemo therapy so I am now starting to worry about what will happen on Monday. Now before they will give me the Avastin I have to have my urine tested for protein. If I have any protein in my urine I can’t get the Avastin. Recently I joined an online community for advanced breast cancer fighters. There are many women who have done the same regiment as me and now they are only on Avastin. They continue to be NED (No evidence of disease) or have stabilized tumors on Avastin. Some women have been on Avastin alone for up to 2 years with no side effects. When I discussed this with my doctor he said that was an option for me as well as long as I responded to the Avastin and it kept shrinking my tumor or controlled it (meaning it wasn’t growing anymore). This would give me at least an extra two years. The side effects of Avastin are minimal. The only thing I get from the Avastin are bloody noses every morning. Avastin also affects my vocal cords making them very tight so I am very hoarse, sometimes losing my voice if I use it too much. Now I feel as if the option for an additional two years is being pulled out from under me. Please pray that my doctor will be able to find something that will compare to Avastin.
Now that we have gotten the serious thing out of the way I have a funny story. I was at Walmart the other day and an older man said “Wow you have 4 kids” I looked at my cart and said “No, I only have 3.” He responds “Wow you still have your hands full.” Without hesitation I say “Yeah, I have resorted to pulling out my hair.” The poor man did a double take and quickly walked away. HEHEHE
Thursday I went to Six Flags with my sister and cousin. The kids had a great time. I am so thankful that I still have enough energy to do fun activities like this. I was worried about my poor scalp getting burned to a crisp but I kept sunscreen or a hat on so it wasn’t a big deal. Hopefully by the time I lose all the hair my scalp will be tanned so it won’t look too bad.
Please pray for my upcoming treatment on Monday. It will be my halfway point!! Yeah!!